BioNews, Inc. a digital news company dedicated to creating communities for patients with rare diseases and their caregivers, is looking for members of the cold agglutin disease community to join our freelance staff of patient and caregiver columnists on FAP News Today.
A BioNews columnist is a patient or caregiver who shares about life with rare disease. Through personal essay or column format, they write to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communitiesc
All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.
Please note you MUST be a member of the FAP (familial amyloid polyneuropathy)/hATTR amyloidosis/ATTRv amyloidosis community -- patient or caregiver -- in order to apply for this position.
Responsibilities and Duties
Fulfill 1x weekly deadlines as agreed upon with director of community content.
Communicate efficiently with manager and editors.
Submit 400-800-word drafts that adhere to BioNews policies and procedures.
Aside from exceptions, drafts should not take more than 45 minutes to edit.
Fulfill revisions as requested by editors in a timely manner.
Complete training assigned by BioNews HR.
Experience Required
Prior experience with writing for an audience.
At least three months’ direct experience with having or caring for someone with FAP (familial amyloid polyneuropathy)/hATTR amyloidosis/ATTRv amyloidosis
Caregivers must be direct relatives, guardians, or spouses.
Experience Preferred
Experience in being professionally edited for publication.
Experienced in generating a blog or column.
Participation in support groups, internet forums, or community groups relevant to FAP (familial amyloid polyneuropathy)/hATTR amyloidosis/ATTRv amyloidosis.